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Dravet Syndrome Foundation
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Dravet Syndrome Foundation : ウィキペディア英語版
Dravet Syndrome Foundation

The '' Dravet Syndrome Foundation '' (DSF) is a volunteer run, non-profit organization based in the United States. The mission of the foundation is to aggressively raise research funds for Dravet's syndrome and related epilepsies, while providing support to affected individuals and families. The Dravet Syndrome Foundation is listed as a research and support organization on National Organization of Rare Diseases's (NORD) database.〔http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Dravet%20Syndrome〕
== History ==
The Dravet Syndrome Foundation was founded by parents with the purpose of expediting research to find a cure and better treatments for their afflicted children.〔http://findarticles.com/p/articles/mi_go2827/is_6_40/ai_n56366361/〕〔http://www.heroesforlife.org/site/PageServer?pagename=oh_pf_ciara&collapse=0〕
It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in September 2009 by the Internal Revenue Service under Section 501(c)3.

抄文引用元・出典: フリー百科事典『 ウィキペディア(Wikipedia)
ウィキペディアで「Dravet Syndrome Foundation」の詳細全文を読む



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